Wednesday, June 16, 2010
Tuesday, June 15, 2010
Today I didn't want to get up from bed. But I did. & I went for my new Tuesdays walk w/ a friend. & I got stuck carrying Dante on my chest on one of my 5 carriers. The one I tested thoroughly to insure minimal back pain. I was doing great...just some left shoulder pain after the hour plus walk. Even hit the new Price Choppers in Warwick for an excrutiating 2 1/2 hours...NOW 12 hours later I just want to roll up into a ball. My neck, back, left shoulder & any joint in the vicinity is a hot mess!! WTF!! I will not give up! So my hubby will be off the next 2 days & WE will go hit the trails (maybe Goshen as Chester isn't marked! NOT doing almost 3 miles one way/six round trip again!) EVEN my hands are killing me! Imagine if there weren't any computers & I had to write all this shit down! HAHAHA!! NOT HAPPENING!!
SO Lady Gaga's confused self is donating her necklace from her video, Poker Face, for auction to benefit the LPA! COOL! I say confused cause she claims to have borderline Lupus. NO SUCH THING girlfriend! Either you have it or you don't. It's probable that she does have it. It is not easy to diagnose. There is no one test for it. She may have misunderstood what she was told. Whatever. I hope she doesn't have it! If she does then it sucks. I hope she will be a positive voice for the LPA though! I mean come on - let's listen to Adela or Lady Gaga!?! LMAO! She's effin Lady Gaga for Pete's sake! So far she's going down the right path. So to Lady Gaga I say Thanks for bringing awareness. There aren't PSAs on it like there are for Parkinson, Cancer, Diabetes...etc.
OK so even typing is getting too painful so I'm gonna stop here...:( Plz keep reading! Love ya all!
SO Lady Gaga's confused self is donating her necklace from her video, Poker Face, for auction to benefit the LPA! COOL! I say confused cause she claims to have borderline Lupus. NO SUCH THING girlfriend! Either you have it or you don't. It's probable that she does have it. It is not easy to diagnose. There is no one test for it. She may have misunderstood what she was told. Whatever. I hope she doesn't have it! If she does then it sucks. I hope she will be a positive voice for the LPA though! I mean come on - let's listen to Adela or Lady Gaga!?! LMAO! She's effin Lady Gaga for Pete's sake! So far she's going down the right path. So to Lady Gaga I say Thanks for bringing awareness. There aren't PSAs on it like there are for Parkinson, Cancer, Diabetes...etc.
OK so even typing is getting too painful so I'm gonna stop here...:( Plz keep reading! Love ya all!
A little about me
Please bear with me! I'm so very new @ this blogging thing. I don't really know how to use these short cut words except for simple ones like LOL or OMG! I must drive my son nuts when I text him! LOL! SEE!!
Anyway - I'm doing this for 2 reasons. To put a face to Lupus - bring an awareness to it & to force myself to research it & try to make my life a little less painful & better with the info I find. For myself & for my hubby & for my 3 beautiful kids. Maybe someone else who also has Lupus will read all my craziness & laugh or feel better about their craziness!
I have been suffering from Lupus for quite some time now but was only officially diagnosed 3 years ago. It is affecting all my joints right now. Some mornings I can barely move or get out of bed cause I am SO stiff & it is very painful. Some mornings I'm ok & can jump right up but to tell you the truth - I HATE getting up early! I LOVE laying in bed w/ my 2 little ones - you all know JR is way to "GROWN UP" to lay in bed w/ his Mami! LOL! Once in a purple (NOT blue - purple!) moon JR will join us & especially if my dear hubby Chris is off & hanging around. He IS a morning person & has no issue w/ getting up early - just that he NEVER hears the baby wake up! LOL! Quite convenient don't you think! LOL! I LOVE Chris though! He is the most supportive person I have ever met. W/ Lupus you definitely need someone like that.
For now I'll keep this short! (Can you believe that! LOL!) Sometimes I will blog about the kids. Sometimes I'll blog about what I'm feeling. Sometimes I will blog about Lupus & what I know or am learning. Please bear with me. I don't claim to know it all but I want to help somehow to bring awareness to the disease. Please keep reading! Love ya all!
Anyway - I'm doing this for 2 reasons. To put a face to Lupus - bring an awareness to it & to force myself to research it & try to make my life a little less painful & better with the info I find. For myself & for my hubby & for my 3 beautiful kids. Maybe someone else who also has Lupus will read all my craziness & laugh or feel better about their craziness!
I have been suffering from Lupus for quite some time now but was only officially diagnosed 3 years ago. It is affecting all my joints right now. Some mornings I can barely move or get out of bed cause I am SO stiff & it is very painful. Some mornings I'm ok & can jump right up but to tell you the truth - I HATE getting up early! I LOVE laying in bed w/ my 2 little ones - you all know JR is way to "GROWN UP" to lay in bed w/ his Mami! LOL! Once in a purple (NOT blue - purple!) moon JR will join us & especially if my dear hubby Chris is off & hanging around. He IS a morning person & has no issue w/ getting up early - just that he NEVER hears the baby wake up! LOL! Quite convenient don't you think! LOL! I LOVE Chris though! He is the most supportive person I have ever met. W/ Lupus you definitely need someone like that.
For now I'll keep this short! (Can you believe that! LOL!) Sometimes I will blog about the kids. Sometimes I'll blog about what I'm feeling. Sometimes I will blog about Lupus & what I know or am learning. Please bear with me. I don't claim to know it all but I want to help somehow to bring awareness to the disease. Please keep reading! Love ya all!
Subscribe to:
Posts (Atom)